Wednesday Nov 20th, 2019—4:00pm to 5:00pm
Digital Health Privacy and Age: Legal and Ethical Considerations in Long-Term Care
Tara Sklar, JD, MPH
Sensor monitoring technologies provide a promising avenue for improving quality and safety in long-term care at senior residential facilities and directly in the home. The growth in the use of sensors reduces staffing challenges, enables older adults to have a greater degree of self-management, and decrease overall costs of care. The advantages of sensor monitoring technology are not, however, without their risks: the necessary trade-offs between innovation and privacy are heightened when applied to an older population where decreased cognitive function plays a larger role. While there is emerging scholarship on privacy concerns in health care settings and for patient data sharing, there is limited literature that explores privacy and acceptance of sensors by seniors in long-term care settings. This Article raises legal and ethical considerations around the continuous use of sensors in long-term care and suggests optimal integration approaches to align with the emerging privacy protections in digital health.
Tara Sklar, JD, MPH, is a Professor of Health Law and Director of the Graduate Health Sciences Programs at the University of Arizona James E. Rogers College of Law. At the University of Arizona, Sklar launched and oversees multidisciplinary, online graduate programs in Health Law, including a future Graduate Certificate in Aging Law & Policy. Professor Sklar teaches and writes on how laws and policies influence the health and well-being of older adults. Her research has appeared in the Journal of Empirical Legal Studies, Annals of Health Law & Life Sciences, and The Elder Law Journal, among others. Prior to her current role, Sklar was the inaugural Director of Aging Programs and established the first online Master of Aging degree across eight colleges at the University of Melbourne in Australia. In collaboration with Coursera, she designed and led a Massive Open Online Course (MOOC) that has registered nearly 20,000 students called Rethinking Aging: Are We Prepared to Live Longer?.
Wednesday Oct 16th, 2019—4:00pm to 5:00pm
The Ethics of Uterine Transplantation
Hilary Mabel, JD
On July 9, the Cleveland Clinic announced a successful birth by a woman who had received a uterine transplant from a deceased donor. Now that it has been proven successful, we ask Hilary Mabel, JD, from the Cleveland Clinic to lead us in a discussion of the ethics of the procedure. We know we can do it, but should we continue to do it?
This webinar will not be recorded at the request of Ms. Mabel, so register today to participate!
Friday Sep 13th, 2019—9:00am to 4:00pm
ABN Annual Conference
In lieu of our September webinar, ABN is hosting its 8th Annual Conference entitled "Current Controversies in Bioethics." Join us at Banner Baywood Hospital as we learn about the ethical issues and current controversies in bioethics. We'll spend the day exploring the bioethical controversies in the news. What or who determines if "Do Not Resuscitate" orders should be honored for a patient with dementia? What are the ethical stances to medical assistance in dying? What can we foresee as issues when artificial intelligence takes a prominent place in medicine? Should your genomic data be collected and used in a public space? We hope you'll join us to hear from experts in their fields and share with them. Registration fee of $50 includes lunch. Students and residents pay a discount fee of $25. Full agenda and link to registration form is here.
Wednesday Aug 21st, 2019—4:00pm to 5:00pm
Sex and gender: Binaries or bimodal?
Melissa Wilson, PhD
Watch this webinar: http://bit.ly/2P3MRsn
Understanding sex as a biological variable (SABV) is now considered one of the top priorities of the National Institutes of Health, spanning all institutes. This is because for most of clinical genetics, only one sex was studied, and now drugs, treatments, and therapies are failing at higher proportions in the unstudied (or understudied) sex, typically women. Layering on top of this, is the recognition that sex chromosomes, reproductive hormones, and gender identity all play unique rolls in both how disease manifests, and how patients are treated. Dr. Wilson leads the discussion on sex and gender in human health.
Melissa Wilson, PhD is a computational evolutionary biologist whose main research interests include sex-biased biology. She studies the evolution of sex chromosomes (X and Y in mammals), why mutation rates differ between males and females, and how changes in population history affect the sex chromosomes differently than the non-sex chromosomes. Generally she studies mammals and regularly engages the public in discussions about the difference between sex and gender, the importance (or not) of genetic inheritance, and understanding evolution.
Dr. Wilson is one of the authors of the recently published article: "The Pregnancy Pickle: Evolved Immune Compensation Due to Pregnancy Underlies Sex Differences in Human Diseases"
Note:Recording was begun late. Dr. Wilson is affiliated with the Center of Evolution and Medicine, the College of Life Sciences at ASU. Her twitter handle is @sexchrlab
Wednesday Jul 17th, 2019—4:00pm to 5:00pm
Human research: What can we believe? How do we protect subjects? Reflections of a journal editor and former research subject participant.
David Sklar, MD
Watch this webinar: http://bit.ly/2JMnyFF
Dr. David Sklar is editor of Academic Medicine and an emergency physician. He does research in health services and health professions education. He's former chair of emergency medicine and associate dean of graduate medical education at the University of New Mexico. He's a professor at Arizona State University in the School for the Science of Health Care Delivery and senior advisor to the university provost in health policy and health professions education and author of the book Atlas of Men.
Dr. Sklar asks that you please read Atlas of Men prior to session, if possible, as he will refer to it in his presentation. He will be discussing the following:
- Ethics and research
- History of human subjects protection
- The use of expert review of research including decisions about publications and what we can do to publish more replicable and useful research
Wednesday Jun 19th, 2019—4:00pm to 5:00pm
Recent Updates in the Law: Public Health and Government Regulation of Behavior
Valerie Gutmann Koch, JD
Watch this webinar: http://bit.ly/2Y5DRXj
Join us as Valerie Gutmann Koch highlights recent updates in the law where public health officials and the government have taken steps to regulate behavior. A recent law in Arizona regarding the ownership of embryos is just one of the laws on this list.
Valerie Gutmann Koch is a Visiting Fellow at DePaul University College of Law and the Director of Law and Ethics at the University of Chicago’s MacLean Center for Clinical Medical Ethics. Professor Koch earned her J.D. degree from Harvard Law School, where she was the co-editor of the recent developments section of the Journal of Law, Medicine & Ethics. Professor Koch iserves as the Chair of the ABA’s Special Committee on Bioethics and the Law and Co-Chair of the Law Affinity Group for the American Society for Bioethics and the Humanities.
Wednesday May 15th, 2019—4:00pm to 5:00pm
Ethical Dilemmas in Deep Brain Stimulation
Lauren Sankary JD MA
Watch this webinar: http://bit.ly/2Jod7u8
Deep brain stimulation (DBS) was approved by the FDA as a treatment for Parkinson's Disease in 1997, and has since been approved for use in the treatment of dystonia, obssessive-compulsive disorder, and in 2018 as a treatment for epilepsy. Beyond the potential complications from surgery as the device and its electrodes are implanted, there are also potential neuropsychiatric side effects after DBS and ongoing considerations related to battery replacement or device removal. What ethical considerations arise when implanted neurotechnology alters the brain?
Lauren Sankary, JD MA is a NIH BRAIN Initiative Postdoctoral Research Fellow at the Cleveland Clinic. She leads the discussion on these dilemmas.
Wednesday Apr 17th, 2019—4:00pm to 5:00pm
When Uninsured Immigrant Patients Need Long-Term Care: Ethical and Practical Challenges
Nancy Berlinger, PhD
Watch this webinar: http://bit.ly/2IFF5Ak
Nancy Berlinger, PhD will lead us in the exploration of the ethics of medical repatriation, that is, the practice of returning an uninsured, indigent immigrant who needs long-term care to his/her native country. What are the moral duties of our institutions? What are the moral duties of the patient and/or their families? In some cases, the patient would be covered by insurance in the native country. Does that change the moral claim of the patient? In a previous article, Berlinger lays out all the possible courses of action, using a realistic case study of an injured construction worker who is undocumented and who could benefit from appropriate rehabilitative care.
Dr. Berlinger is a Research Scholar at The Hastings Center, an independent, nonpartisan, and nonprofit bioethics research institute founded in 1969 and located in Garrison, New York. Her interests include health care ethics and social ethics in aging societies; health care access for migrants; the management of safety and harm in health care systems, and problems at the intersection of these issues. Berlinger directed the research project that produced a revised and expanded edition of the landmark Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life (OUP, 2013). She is also the author of Are Workarounds Ethical? Managing Moral Problems in Health Care Systems (OUP, 2016) and After Harm: Medical Error and the Ethics of Forgiveness (Johns Hopkins, 2005).
Wednesday Mar 20th, 2019—4:00pm to 5:00pm
Medical assistance in dying in Canada: Lessons from the Great White North
Jocelyn Downie, JD
Watch this webinar: http://bit.ly/2JtyTxa
Due to operator error, the first two minutes of this webinar were not recorded, in which she discussed some of the history of MAID in Canada. I encourage you to watch the recording because it is full of much more information regarding the challenges still facing MAID in Canada.
Jocelyn Downie, JD is the James S. Palmer Chair in Public Policy and Law; Professor of Law; Pierre Elliott Trudeau Foundation Fellow; University Research Professor, Faculties of Law and Medicine; Adjunct Professor, Australian Centre for Health Law Research - QUT. In this webinar she leads us through the history, process, policies, ethics, and shortcomings of the Canadian law "Medical Assistance in Dying."
Wednesday Feb 20th, 2019—4:00pm to 5:00pm
To Share or Not to Share (my data): That's only (part of) the question
Anita Murcko, MD, FACP , M. Adela Grando, PhD
Patient-centered, total-person care means attending to body, mind, and spirit. It also means sharing and integrating behavioral and physical health data with social determinants of health. That's the focus of the 5-year, NIMH-supported project, My Data Choices, that is, evaluation of effective consent strategies for patients with behavioral health conditions. In this webinar, Drs. Murcko and Grando share insights on the project, as well as lessons learned about clinical, ethical, policy, regulatory, and technological implications of data sharing.
Dr. Anita Murcko, MD, FACP is a Clinical Associate Professor at the College of Health Solutions at ASU with nearly 30 years of healthcare experience. She also leads Cambiare, LLC, the e-health consulting company she founded in 2009. M. Adela Grando, PhD, is an Assistant Professor, College of Health Solutions at ASU. Adela Grando joined the Department of Biomedical Informatics at Arizona State University in 2013. She leads projects focused on building portable decision aids that support patient's decision process.
Wednesday Jan 16th, 2019—4:00pm to 5:00pm
Algorithms in Kidney Exchange: Ethics in Artificial Intelligence
Patricia A. Mayer, MD, MS, Duncan McElfresh, MSe
Watch this webinar: http://bit.ly/2AP6P0y
Join us as Dr. Mayer and Mr. McElfresh describe the ethical challenges in the algorithms used for transplant pairing. Who decides what the choices in transplant pairing should be?
Dr. Mayer is a palliative care physician and ethicist with Banner Baywood and Heart Hospitals, who has extensive experience in transplant programs. Mr. McElfresh is PhD student with an interest in artificial intelligence.
Wednesday Dec 12th, 2018—4:00pm to 5:00pm
Religious Identity and Workplace Discrimination
Aasim I. Padela, MD, MSc, FACEP
Watch this webinar: http://bit.ly/2QVfZO8
Aasim Il Padela, MD, MSc, FACEP
University of Chicago School of Medicine
Director of Program on Medicine and Religion
Director of Initiative on Islam and Medicine
Associate Professor, Section of Emergency Medicine
Faculty, Maclean Center for Clinical Medical Ethics
Dr. Padela is an emergency medicine physician, health services researcher, and bioethicist whose scholarship focuses on the intersection of minority health and bioethics through the lens of the healthcare experiences of American Muslim patients and health care providers. He will share his research regarding the discrimination in the workplace American Muslim physicians experience.
Wednesday Oct 17th, 2018—4:00pm to 5:00pm
Updates on Compassionate Use, Right to Try, and Access to Unapproved Medicines: Ethical and Practical Issues
Alison Bateman-House, PhD, MPH, MA
Watch this webinar: http://bit.ly/2EwDbzF
Dr. Alison Bateman-House gave a webinar to ABN in November 2015 in which she discussed the ethical and practical issues with compassionate use, right to try, and unapproved medicines. Now that Right to Try has become federal policy, in part because of work done by the Goldwater Institute here in AZ, Dr. Bateman-House will give us updates on what the policy means for patients and clinicians.
Wednesday Sep 19th, 2018—4:00pm to 5:00pm
An Ethical Comparison of Health Care in the US and Canada: Why it’s an Impossible Dream for the US to have a System like Canada’s
Kathleen O'Connor, DPS, MBA, LMSW
Watch this webinar: http://bit.ly/2TgcBmq
Kathleen O'Connor, DPS, MBA, LMSW, has researched, as well as experienced, the medical system in Canada and the United States and in this presentation she will provide the philosophical and ethical tenets/differences between the US and Canadian healthcare systems. She will detail the evolution of the current healthcare systems in the US and Canada and finally, consider the current concerns, possible solutions and future options for in both countries.