Wednesday May 18th, 2022—4:00pm
The Bioethics of Biomarkers: Increasing health equity through Indigenous genomic data sovereignty
Krystal Tsosie, PhD, MPH, MA
Watch this webinar: https://bit.ly/3FYIF40
Indigenous people still constitute <1% of participants in precision and genomic medicine research despite endeavors to increase inclusivity. Past ethical issues related to Indigenous genomics have not been adequately reconciled and are now being repeated in the new era of Big Data. Concerns persist about the collectivization of Indigenous data into open-access databases that circumvent tribal research oversight, the underestimation of socioeconomic and cultural factors contributing to health disparities, and continued biocommercial exploitation of Indigenous biomarkers.
Krystal will describe community-engaged research in two tribal communities and describe paths forward that center Indigenous people as the agents of access for their own genomic and health data. The future of Indigenous genomics is not mere inclusion but through recognition of Indigenous genomic and data sovereignty.
Krystal Tsosie (Diné/Navajo), MPH, MA, is completing her PhD in Genomics and Health Disparities at Vanderbilt University. As a geneticist-bioethicist, she co-founded the Native BioData Consortium, the first US Indigenous-led biobank and 501c3 nonprofit institution. Her research centers on ethical engagement with Indigenous communities in genomics and precision health. Utilizing dual quantitative and qualitative methods, she incorporates biostatistics, genetic epidemiology, public health, and computational approaches to disparities in, particularly, women’s health. Krystal’s research and educational endeavors have received international media attention in The Washington Post, NPR, New York Times, The Atlantic, Forbes, Boston Globe, among others.
Wednesday Apr 20th, 2022—4:00pm
Cybersecurity, Ransomware, and EHRs
Christian Dameff, MD
As cyberhackers become more sophisticated, we've seen instances where they have infiltrated the electronic record systems of hospitals. What does it mean to a hospital system when such a cyberattack occurs? In the case linked here, no ransomware was paid, but the cost to the hospital system was $50 million, and created delays in care for patients.
Dr. Christian Dameff is an Emergency Physician, Clinical Informaticist, and researcher. He is the Director of Cybersecurity at University of California, San Diego. Dr. Dameff is also a hacker and security researcher interested in the intersection of healthcare, patient safety, and cybersecurity. He has spoken at some of the world’s most prominent hacker forums including DEFCON, RSA, Blackhat, Derbycon, BSides: Las Vegas, and is one of the cofounders of the CyberMed Summit, a novel multidisciplinary conference with emphasis on medical device and infrastructure cybersecurity. Published cybersecurity topics include hacking 911 systems, HL7 messaging vulnerabilities, and malware. In this webinar he will share some of the vulnerabilites in the current health systems and the ethical challenges of paying ransomware.
Wednesday Mar 16th, 2022—4:00pm
Ethical Issues in Caring for Mentally Ill Incarcerated Youth
Teresa Mayer, MD
Watch this webinar: https://bit.ly/3KW38bf
Dr. Mayer is the Psychiatric Medical Director, Division of Youth Services, Colorado. She is Board Certified in Adult, Child and Adolescent Psychiatry and is a Forensic Psychiatry Fellow at University of Colorado. In this webinar she discusses some of the ethical challenges in providing mental health services to incarcerated youth.
Wednesday Feb 16th, 2022—4:00pm
The Ins and Outs of Managing an Incarcerated Patient in the Hospital
Marc Stern, MD. MPH
Watch this webinar: https://bit.ly/34P77qy
It can be challenging managing a patient in the hospital who is under guard by jail or prison officers. This webinar will address the common challenging questions that arise, such as: What are their rights with regard to medical decision-making? What do you do with a patient who lacks decision-making capacity? If a patient is a ward of the state, who calls the shots? Is the prison warden the “next of kin”? How does one interact with the officers who stand guard over the patients? What can they know about the patient’s condition? Does HIPAA apply to these patients? What is the standard of care for an incarcerated patient? Should I force feed a patient sent from the jail because they’re on hunger strike?
Dr. Marc Stern was previously the chief medical officer of the correctional facilities for the state of Washington. When the Washington began using lethal injection as its capital punishment, Dr. Stern resigned his position because of the use of his office for the procurement of the pharmaceuticals. Marc Stern received the B.S. degree from the University of Albany in 1975, and the M.D. degree from the University of Buffalo in 1982. He completed a residency in Internal Medicine, and obtained an MPH from Indiana University School of Public Health in 1992. He is currently an assistant professor at U. Washington, School of Public Health. He is also a member of the National Commission on Correctional Health Care and has published extensively on that subject in NEJM, Journal of Nephrology, Annals of Internal Medicine, and the American Journal of Public Health. He is on the editorial boards of the International Journal of Prison Health and the Journal of Correctional Health Care.
Wednesday Jan 19th, 2022—4:00pm
Implications of the Approval of Aduhelm for the Stewardship of Public Trust
Lauren Sankary, JD, MA
On June 7, 2021, the US Food and Drug Administration (FDA) approved aducanumab (Aduhelm; Biogen Inc), the first new drug for the treatment of Alzheimer disease in 2 decades. The approval of the drug, however, by FDA has not been without controversy and therefore, ethical challenges, as there are questions about its value. Lauren Sankary, JD, shares with us some of the ethical challenges that arise with this drug, and the state of FDA approvals.
Lauren Sankary is Associate Director of the Neuroethics Program, and Clinical Ethicist at Cleveland Clinic Neurological Institute, Department of Bioethics.
Wednesday Nov 17th, 2021—4:00pm
Documenting a Bioethics Consultation in the Medical Record
Patricia Mayer, MD, MS, HEC-C
You've held a bioethics consult, now what? A previous webinar by Kathleen O'Connor DPS, MBA, LMSW discussed how to prepare a patient case for an ethics committee consultation. In this webinar, Patricia Mayer, MD, MS, HEC-C will lead us through a best practice manner of entering the documentation following the consultation into the medical record. Ensuring all the required information is entered helps the team deliver the appropriate patient-centered care and Dr. Mayer elaborates on those details and the procedure.
Dr. Mayer is Director of Clinical Ethics at Banner Gateway/MD Anderson, has been a member of the COVID-19 Pandemic Committees since March 2020, and teaches clinical ethics and medical humanities in her positions at Cleveland Clinic, the UA College of Medicine-Phoenix, Case Western University, and Mayo Clinic School of Medicine.
Wednesday Oct 20th, 2021—4:00pm
Providing Gender-Affirming Healthcare
Leonardo Candelario Pérez, PhD
Watch this webinar: https://bit.ly/3G2t2Zb
Leonardo Candelario Pérez, PhD is a sexual health psychologist and co-chair of Adolescent Gender Services at Health Partners, a consultant for the National Center for Gender Spectrum Health, and the LGBTQI+ consultant for Centro Tyrone Guzman. Dr. Leo will be sharing with us the importance and methods of providing gender-affirming healthcare.
Friday Sep 17th, 2021 to Saturday Sep 18th, 2021—9:00am to 12:00pm
ABN 10th Annual Conference
See Agenda below
Ethical Challenges in Mental Health
September 17 & 18, 2021
9 am - noon each day, with optional breakout session immediately following the morning session
The COVID-19 pandemic has identified ethical challenges that arise when a health care system is stretched to its limits in providing care. Health professionals, social workers, and the public have faced these challenges. Healthcare professionals saw an increase in suicides or burnout, and they have expressed concern at the lack of support for mental/behavioral health needs for their members. The dynamics of healthcare changed during the pandemic through its extensive reliance on telemedicine. Some challenges are persistent, such as questions of suitable research subjects, the use of genomic data, and difficulties placing children in treatment facilities.
We've invited speakers to share their knowledge of the ethical challenges that can arise in the treatment, access to resources, stigmatization, and research of mental illness. *5 Continuing Education Units Available (ACE, CME, NCPD, IPCE)* The cost to attend the conference is $45 if you require CEUs or $25 if you do not.
|Friday, September 17, 2021|
|9:00–9:05||Welcome and Introduction|
|Patricia Bayless, MD, Chairman of Board, Arizona Bioethics Network|
|9:05–9:45||Mental Health Stigma & Health Professionals|
|Tala Dajani, MD, MPH|
|9:45–10:30||Reset and Rejuvenate!|
|Shelley J. Tom, MS, LPC, RYT 200, CDWF|
|10:30–11:15||Ethical Concerns in the Treatment of Incapacitated Patients|
|Joanna Kowalik, MD, MPH, FAPA|
|11:15–12:00||Ethics in Research: Subjects with Mental Illness|
|Gwen A. Levitt, DO, DFAPA|
|12:05-12:45||Optional Individualized Break-out Rooms for Further Discussion|
|Saturday, September 18, 2021|
|9:00–9:05||Welcome and Introduction|
|Patricia Bayless, MD, Chairman of Board, Arizona Bioethics Network|
|9:05-9:45||Divided Medicalization and the Neurodevelopmental Turn: Using Genomic Data to Predict a Changing Future|
|Elizabeth Fein, PhD|
|9:45–10:30||The Pipes are Clogged: Finding Flow in Children’s Higher Levels of Behavioral Health Care|
|Sala Webb, MD, CPH, FAPA, DFAACAP|
|10:30-11:15||Ethics in Providing Telepsychiatric Services During the Pandemic|
|Lisa Cobourn, MD, & Wendy Watson, MD, MPH|
|11:15-12:00||The Ethics and Laws Regarding Patients who Report Homicidal Thoughts|
|Zhi Y. Wu, MD|
|12:05–12:45||Optional Individualized Break-out Rooms for Further Discussion|
|Disclosure Statement: There have been no actual or potential conflicts of interests found or disclosures needed in relation to this activity.|
Wednesday Aug 18th, 2021—4:00pm
Buprenorphine: Data-waived Providers’ Geographic Distribution in Arizona
Benjamin Brady, DrPH
Buprenorphine is used to treat opioid use disorder. In order to prescribe it, however, professionals are required to take training and apply for a waiver. That requirement was set to be removed in January 2021, but President Biden withdrew that option. Dr. Brady will share the data regarding the geographic distribution of the providers' waivers and discuss best practice policies for the future in opioid use disorder.
Update: Even though the Biden administration removed some of the restrictions on medical professionals' ability to give buprenorphine, there is much to learn still from the geographic distribution of the waivers.
Wednesday Jun 16th, 2021—4:00pm
Dementia Advance Directives - Stop Eating and Drinking Directives
Professor Thaddeus Mason Pope, JD, PhD, HEC-C
In this webinar, Dr. Pope will detail some of the options available for advanced directives for persons with dementia, and the legal structure to voluntarily stop eating and drinking.
Thaddeus Mason Pope, JD, PhD, HEC-C, is a professor at Health Law Institute, Mitchell Hamline School of Law, and holds adjunct positions at the Australian Centre for Health Law Research, Queensland University of Technology and the Alden March Bioethics Institute. He also serves as Visiting Professor of Medical Jurisprudence, St. George's University (Grenada, West Indies) and Affiliate Faculty, University of Minnesota Center for Bioethics. As a law professor and bioethicist, he examines using the law both to improve medical decision making and to protect patient rights at the end of life.
Wednesday May 19th, 2021—4:00pm
Contraceptive Justice: Why We Need a Male Pill
Lisa Campo-Engelstein, PhD
Watch this webinar: https://bit.ly/3yBOcts
Dr. Campo-Engelstein, PhD is the Director of the Institute for Bioethics & Health Humanities as well as the Harris L. Kempner Chair in the Humanities in Medicine. She is also Associate Professor, Preventive Medicine and Population Health at University of Texas Medical Branch. In this webinar she discusses the ethics of contraceptive justice and the need for a male contraceptive pill.
Wednesday Apr 21st, 2021—4:00pm
Secondary Medical Research and Consent-Requirements
Kyle Van Oosterum, MA Phil
There is considerable debate in legal and bioethical circles about consent-requirements for secondary medical research. Secondary research is often distinguished from primary research. For example, where primary medical researchers collect blood samples from a participant, secondary medical researchers conduct research on collected blood samples in biobanks. However, if consent is required to conduct secondary research on each of the samples, a variety of complications arises. For one, it imposes significant administrative burdens on the effectiveness of secondary research. Even if consent is solicited at time of sample-collection, the nature and purpose of future secondary research is rarely foreseeable, meaning that disclosure of research to participants is not possible, thereby straining the notion that such consent is informed This presentation critically focuses on the question of whether consent is required for secondary research and proposes a novel contractualist account of biomedical research: Consent Once, Use Many Times (COUMT.)
Kyle Van Oosterum is a MPhil in Philosophy candidate at the University of Cambridge (2020-2021). He has been awarded several honors in his educational career. He will be joining us from the UK for this webinar. For this particular webinar, ABN posted a call for papers on the Philosophy forum PhilEvents, and Mr. Van Oosterum's abstract was chosen from that call.
Earn one CME, CNE, or ACE, as well as IPCE by participating in this webinar online and completing the evaluation form afterward.
Wednesday Mar 17th, 2021—4:00pm
Reporting on Arizona Department of Corrections: Healthcare, Vaccines, Software
Jimmy Jenkins is a reporter at KJZZ and has been reporting recently on the health and health care access of prisoners under the supervision of Arizona Department of Corrections. He will share some of his reporting with us as we discuss the ethical responsibility of Arizona in providing health care for incarcerated persons. If you attended our conference in September, you'll remember we had Corene Kendrick present information on the Parsons case. There has been recent activity on that case as well.
Earn one CME or CNE for participating in this webinar and completing an evaluation form afterward.
Wednesday Feb 17th, 2021—4:00pm
Healthcare Directives and the HIE: Considerations for Developing an Effective Healthcare Directives Registry
Chase J. Millea, JD
The pandemic has highlighted the need for persons having not only an advanced care directive, but also having it accessible across communities and providers. Chase Millea is In-House Counsel and Director of Regulatory Compliance of Health Current. In this webinar he will describe efforts to record advanced care directives on Health Current.
Wednesday Nov 18th, 2020—4:00pm
Waiving Students’ Rights Goodbye? The Legal and Ethical Implications of Liability Waivers
Bryn Esplin, JD, HEC-C
Watch this webinar: https://bit.ly/38TTExj
The pandemic has disrupted education at all levels. In the context of medical education, the requisite that students’ training consists of in-person patient encounters during their clinical rotations has presented new dilemmas. Some schools introduced so-called ‘liability waivers’, wherein students would waive their right to legal action should they develop COVID-19 resulting from clinical rotations. Professor Esplin discusses the contractual legality, overarching ethical implications, and the feasibility of releasing a school from responsibility in that instance, Looking ahead, too, this presentation will explore how medical education may change if patient contact is reduced for students to reduce spread of the disease. This discussion will explore those topics and many more. Bring your experiences and questions!
Professor Esplin is an assistant professor of medicine at University of North Texas Health Center.